Meet Beautiful ‘M’: A Marfans story.

Isaiah Austin has Marfan Syndrome and won’t be able to play professional basketball in the NBA. That dream is over. But due to his talent and popularity he has many opportunities to remain in the sport he loves from coaching at his alma mater to a job with the NBA once he finishes school.

Isaiah Austin with NBA Commissioner

You’re wondering why you should you care, right? Ronovan doesn’t write about sports. Keep reading. How often do I not have a madness to my method?


Marfan and Beautiful ‘M’

by: Ronovan

“About 1 in 5,000 people have Marfan syndrome, including men and women of all races and ethnic groups.”


Now take a look at what Marfan Syndrome is:


“Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue holds all the body’s cells, organs and tissue together. It also plays an important role in helping the body grow and develop properly.” “Some Marfan features – for example, aortic enlargement (expansion of the main blood vessel that carries blood away from the heart to the rest of the body) – can be life-threatening. The lungs, skin and nervous system may also be affected. Marfan syndrome does not affect intelligence.”



For something most of us that has never heard of it, we can tell by that simple blurb this is a very serious disorder.



What if you aren’t a superstar athlete . . . in a popular ‘sport’?



First of all, don’t think I am knocking Isaiah Austin. He didn’t ask for Marfan or the opportunities coming his way. That’s not it. Now that he’s drawn attention to Marfan I want to draw attention to another side of it.

Meet ‘M’. She’s not a superstar yet, well not to the world but she is to those who know and love her, but she is a competitive athlete. She’s been in competitive cheerleYoung Cheerleader with Marfanading for most of her life.

Some don’t realize how tough competitive cheer is. ‘M’ has been a flyer. Meaning she is the one that is thrown in the air and just prays she is caught. She has to spin and do all sorts of things while up there and still find her mark on the way down M-InAirwhile trying to stay in sync with the other flyers.

On top of that she also does the gymnastic tumbling and has to be super strong in her core, abdomen in order to stay stiff as a board while standing up with people holding her in the air. Or how about you have to support someone as they jump over your head while you are in the air? Think it’s easy? Try it. Plus she also has to hold others in the air while she is up on peoples hands because she is so strong. You know that person in the middle of all those people up in the air that others are hanging onto? That’s ‘M’.

Continue reading


Jacob: Chapter 1 Part 1



by: Ronovan

Chapter 1 Part 1

Over 100 years since the last time and I’m going to miss it. There it is, just the beginning. At least I get to see that much. A lunar eclipse, a complete one, and I’ll be stuck inside having to choose between two worlds I still know nothing about.

I suppose that makes sense today. The first day I can remember had storms, but then do you really remember the first day of sunshine? But today is different. This is the last day I will get to see this view. Where does that jagged laser of lightening strike or does it even strike at all? Why am I up here at all? And most importantly where will I end up striking?

18 years of being taught two worlds and I don’t know which one to choose. Everyone else seems to know where they will land as they fall out of this sky that the Academy represents. But I don’t know. Not much longer and I will be forced to pick what the rest of my life will be ruled by, what the rest of my life’s thoughts will be ruled by.

I think therefore I am. Are we really taught to think though? We are given ‘facts’ from two philosophies without really knowing how to determine which one is correct. How do you know if something is right if you aren’t taught how to determine right from wrong? This is fact, no this is fact. Who do you believe?

From the top of the Academy tower I can see both worlds I must choose between. But neither have I been invited into to experience. How can I choose without knowing the reality of each? How do I know if either are reality? Give each the same word and they each give a different definition.

The headache magnifies. Each one has been greater than the last as this day has grown nearer. But I am not sure which pain is greater, that in my head or that in my body as I am twisted and wrenched about. How do the others make it seem so easy? I burn inside when there is nothing to fuel the fire. There is no food there to give the flames the energy to cause the burning that I feel. It has been days.

The wind hits me as the approaching storm pushes the air before it, and I can smell the dampness that will be here soon. What a perfect day to decide the rest of a life. I close my eyes and take a deep breath of the damp air.

“Jump,” a voice whispers.


© Copyright-All rights 08, 2014.